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West Midlands Paediatric Diabetes Network - Terms of Reference
December 2009
Overall Aim:
To raise the quality of paediatric diabetes care across the region improving outcomes and quality of life for children and young people affected by diabetes and their parents and carers.
Objectives:
- In conjunction with the national paediatric diabetes network group and NHS Diabetes to work towards a consistent high quality model of care for England sensitive to, and meeting, both regional and local needs
- To develop suitable assessment approaches to understand the current state of care and inform this development
- To identify gaps in service, barriers and challenges to service improvement and approaches to meet these
- To share information, highlighting, celebrating and promoting best practice and disseminating new approaches
- Ensure that access to care for diabetic children and young people is equitable across the region
- To provide peer support, advice and good counsel
- To regularly link with the national networks group and share learning
- To work towards all units delivering National Diabetes Audit returns
- To explore approaches to the provision of out of hours care
- To work proactively with primary care clinicians to ensure care and outcomes improve in all settings.
- To work towards improving support for Young People in transition from Children’s to Adult services.
- To work towards providing the best patient/parent education available
- To see year on year improvements in HBA1C figures for those affected
- To work to achieve these aims and objectives with the full range of stakeholders including: clinicians, service users (including families/carers), commissioners, West Midlands Strategic Health Authority, service managers, the research/academic community, the voluntary sector and local networks/stakeholder groups where these exist.
Meetings:
Meetings will be held quarterly in to coincide with meetings of the Midlands Paediatric Endocrinology Group. Meetings will include the networks ongoing actions and business as well as selected expert speakers and opportunities to update each other, share news and network as appropriate to support members in their practice.
Support for venue and refreshment costs may be provided by NHS Diabetes or other sponsors as appropriate.
Meetings will be chaired by Jeremy Kirk. The Chair will have the support of a core group consisting of representatives from different areas of the region (Chizo Agwu, John Scanlon, Kathryn McCrea and Julian Backhouse NHS Diabetes). This group will assist in compiling the agenda, informing the network members, taking notes and following up actions.
Membership:
As per contact list
Accountability/Reporting:
The network will report to the national paediatric diabetes network group as appropriate.
Review:
The network will review its role and terms of reference after one year from its inception (Sept 2009) and annually thereafter.
